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November 28, 2023Advocacy Matters

National Survey on Health and Disability

National Survey on Health and Disability

Disability Matters with Joyce Bender

Tuesday, November 28, 2023

#AdvocacyMatters Segment

National Survey on Health and Disability

The University of Kansas Institute for Health and Disability Policy Studies has issued a request to the disability community to participate in a national study that aims to document our experiences with a variety of issues related to health and disability. These issues include access to health care, housing, long COVID, transportation, and employment.

The University of Kansas started surveying health and disability back in 2018 to gain a comprehensive understanding of the health and well-being of individuals with disabilities across the country. The goal is to shed light on the challenges people with disabilities face and identify areas where support and resources are needed.

In previous surveys, one of the most significant findings was that individuals with disabilities often face barriers to access healthcare services. This includes difficulties in finding accessible healthcare facilities, lack of transportation, and limited availability of specialized healthcare providers. Mental health has emerged as a major concern too, with more people with disabilities reporting depression. Previous surveys have found that 35% of Native Americans with disabilities were not receiving health care services. People with disabilities who are also LGBTQ experience have reported worse health and poorer access to health care.

The National Survey on Health and Disability is funded by the U.S. Department of Health and Human Services Administration for Community Living National Institute on Disability, Independent Living, and Rehabilitation Research.


We know that advocacy matters. It is important that we take the survey and add our experiences to the University of Kansas data. Visit,

you will find a link to the survey as well as data from previous surveys (2018-2022).



Data on Survey Results 2018 – 2022